HEALTH SERVICES
SCI is one of the 1% of conditions in Ontario with the highest health care spending.
RHSCIR PROJECT
The Rick Hansen Spinal Cord Injury Registry study (RHSCIR) is part of the Translational Research Program of the Praxis Spinal Cord Institute, formerly known as the Rick Hansen Institute.
In order to better understand the complex needs of individuals who sustain a traumatic SCI, RHSCIR was created from the vision of two individuals: Canadian icon and Paralympian, Rick Hansen and renowned spine surgeon and researcher, Dr. Marcel Dvorak. It is the largest Registry that tracks the experiences of individuals living with traumatic SCI in Canada.
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RHSCIR is a prospective observational study with over 7000 participants
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RHSCIR collects clinical and demographic data from 30 Canadian acute and rehabilitation hospitals specializing in SCI care and treatment.
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RHSCIR advances SCI research and care through a standardized set of clinical information that informs clinicians of beneficial interventions and evidence-based practices
SCI MANIFESTO PROJECT
Spinal Cord Injury: A Manifesto for Change is an unprecedented call to action and a plea for Canadian health-care providers and stakeholders to work in coordination to improve care and the health of people living with spinal cord injury (SCI) in Canada.
The Manifesto, based on the consensus of 23 experts, outlines:
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Long-term issues for people living with SCI including secondary health concerns; increased need and utilization of health-care services; and disparate access to care, services and expertise.
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Conditions associated with significant burden of illness and in extreme cases, risk of death among people with SCI including pressure ulcers, fractures and cardiovascular disease.
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Four necessary actions to transform SCI health-care delivery
The Rehabilitation Environmental Scan Atlas: Capturing Capacity in Canadian SCI Rehabilitation (E-Scan) examines the complexities of SCI rehab, describes the current state of practice and maps the actions required to standardize and transform practice by 2020.
In the Atlas you will find:
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The SCI Rehabilitation Framework derived from the International Classification of Function, Disability and Health by the study investigators
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Rehab goals identified as a priority by individuals with SCI, and a meaningful discussion of what works and what doesn’t in current practice
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Spotlight best practice organizations, featuring programs with exemplary practice
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Take home message on how to implement changes in practice and/or service delivery in clinical care, research and policy
The Spinal Cord Injury Rehabilitation Care High Performance Indicators (SCI-High Project) is a bold endeavor which aims to develop a comprehensive framework of indicators to improve standards of spinal cord injury (SCI) rehabilitation in Canada.
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Through consultation with national stakeholders, 11 Domains of SCI rehabilitation were prioritized (https://www.tandfonline.com/doi/full/10.1080/10790268.2019.1616949)
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National Working Groups containing content experts and patients with lived experience have developed structure, process, and outcome indicators for 11 Domains of SCI rehabilitation. (https://www.tandfonline.com/doi/full/10.1080/10790268.2019.1647386)
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Implementation and evaluation of selected indicators during the first 18 months after SCI rehabilitation admission are currently in progress in Ontario with plans to expand nationally.
The Spinal Cord Injury Implementation & Evaluation Quality Care Consortium (SCI IEQCC) aims to advance the quality of spinal cord injury (SCI) rehabilitation care through the implementation of health indicators and related best practices across prioritized domains of care.
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Funded by the Ontario Neurotrauma Foundation (www.onf.org), the vision for this project is to achieve optimal and equitable health care services for all Ontarians regardless of where they live, and to ensure the functional recovery, health and wellbeing for individuals living with SCI
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Measurement of selected indicators will facilitate the evaluation and monitoring of rehabilitation care delivery, increase efficacy of services, enhance patient outcomes, and contribute to priority setting and policy formulation.
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Six member organizations: Toronto Rehabilitation Institute, Parkwood Institute- SJHC, The Ottawa Hospital Rehabilitation Centre, Hamilton Health Sciences, Providence Care Hospital, and Spinal Cord Injury Ontario.
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Network members collaborate and learn from each other’s experiences, evaluate their performance, engage with one another and external stakeholders
C2ARE PROJECT
The Craig Caregiver Assessment of Rewards and Benefits (C2ARE) is a multisite international study to validate a psychometric tool for assessing SCI caregiver distress and benefit in a sample that includes caregivers of both civilians and veterans with SCI.
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Funded by the Craig H. Neilsen Foundation (https://chnfoundation.org/), Psychosocial Research.
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Development of a valid and reliable measurement tool specifically designed for use in SCI has the potential to inform the development and urgently needed evaluation of interventions for family caregivers.
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Three member organizations: The Craig Hospital Research Department (Englewood, Colorado), Toronto Rehabilitation Institute (Toronto, Ontario), and Louis Stokes Cleveland VA Medical Center (Cleveland, Ohio).
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Validation will include extensive psychometric analysis of C2ARE data collected in a new and sufficiently large sample of SCI caregivers to fully evaluate its validity (construct, criterion), test-retest reliability, and scale responsiveness.