PATIENT ENGAGEMENT IN RESEARCH

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Patient engagement in research leads to research outcomes that are relevant to patient's concerns and health care dilemmas!

CENTRAL RECRUITMENT PROCESS

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Patient engagement is central to moving research forward.

 

The Centralized Recruitment (CR) department began as a research study with spinal cord injured patients at the Toronto Rehab Lyndhurst Centre. Now CR operates across all Toronto Rehab inpatient units. CR promotes patient engagement in research by acting as the liaison between researchers and patients across the hospital. The team of trained Patient Research Liaisons assist patients to explore their participation in research options, and KITE scientists to achieve their target sample size. Central Recruitment provides:

  • Ethically sound recruitment

  • Adheres to privacy legislation

  • Supports research best practices

  • Equal patient access

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VIP4SCI PROJECT

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The Virtual Integrated Platform for Spinal Cord Injury (VIP4SCI) is a virtual care platform that delivers a formal and integrated network of support to people with spinal cord injuries.

VIP4SCI is a virtual care platform that delivers a formal and integrated network of support to people with spinal cord injuries. Lead by Spinal Cord Injury Ontario (SCI-O) in partnership with ForaHealthyMe Inc. it connects resources and peer support services to coordinated virtual care solutions. People living with SCI can remotely connect with specialists in:

  • Physical Medicine and Rehabilitation Physicians

  • Peer Support

  • Social Services

  • Family Physicians

  • SCI-O regional service coordinator to triage questions & concerns

Features include a telehealth service for accessing health care expertise remotely, medication management system, scheduling capabilities, a journal to help track goal setting, and email.

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SCI TRIALS FINDER PROJECT

Spinal Cord Injury Trials Toolkit working group conceptualized a website to connect individuals with SCI to clinical trials and researchers. The SCI Trials Finder website, is a searchable, curated site of SCI studies which is presented in a common format and language.

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RESEARCH VOLUNTEER POOL

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The Research Volunteer Pool is a secure online database comprised of current and former Toronto Rehab patients, who are interested in supporting research initiatives.

 

The RVP intends to connect its members with research participation opportunities, and connect KITE researchers with potential volunteers.

The Research Volunteer Pool supports Patient Engagement in Research (PER) through the Research Partner role.

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